tcllfoundation.org tcllfoundation.org - T-Cell Leukemia Lymphoma Foundation | Seattle, WA

tcllfoundation.orgWebsite Profile

Title: T-Cell Leukemia Lymphoma Foundation | Seattle, WA
Keywords: T-Cell, Leukemia, Lymphoma, Foundation, Lymphoma education, cancer education, cancer resources, support tcll, tcllf, cancer research, suppot the foundation, non-profit organization, cancer support, t...
Description:The T-Cell Leukemia Lymphoma Foundation is a non-profit organization that was formed in an effort to fulfill several purposes.
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Website / Domain:tcllfoundation.org
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Purchase/Sale Value:$3,352
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Yearly Revenue:$$3,352
Daily Unique Visitors:845
Monthly Unique Visitors:25,350
Yearly Unique Visitors:308,425

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Keyword Count Percentage
T-Cell 18 1.57%
Leukemia 3 0.34%
Lymphoma 22 2.58%
Foundation 1 0.14%
Lymphoma education 0 0.00%
cancer education 0 0.00%
cancer resources 0 0.00%
support tcll 3 0.52%
tcllf 5 0.36%
cancer research 0 0.00%
suppot the foundation 0 0.00%
non-profit organization 0 0.00%
cancer support 0 0.00%
t... 0 0.00%

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T-Cell Leukemia Lymphoma Foundation | Seattle, WA About TCLLF Contact Us Join our mailing list. View Cart For Patients For Medical Providers Resources & Support Clinical Trials Get Involved Support TCLLF For Patients For Medical Providers Resources & Support Clinical Trials Get Involved Support TCLLF Solving the T-Cell puzzle together, one piece at a time Become a Sponsor Previous Next Upcoming Events Upcoming Events TCLLF hosts a variety of events, ranging from patient education forums to fundraisers. Check to see what upcoming events may interest or benefit you. View Upcoming Events > Find Resources & Support Find Resources & Support T-cell patients, family members and caregivers have a lot on their minds and shoulders. Visit our resources & support page for information to make their journey a little easier. Browse Resources > Clinical Trials Explore Research View current clinical trials available for PTCL & CTCL patients Search current clinical trials and get access to exciting new advances in T-cell research. View Clinical Trials > Get Involved Get Involved Inquire about ways YOU can get involved by volunteering or planning your own fundraising event to support TCLLF. View Events Calendar > Who We Are Sponsors A Big THANK YOU To Our 2016 Sponsors! Platinum Sponsors Charles Beeler - Los Altos, CA Seth & Lauren Rand - Parkland, FL Tina A. Ross - Marysville, WA To become a Platinum Sponsor - or donate - click HERE Upcoming Events Find Resources & Support Clinical Trials Get Involved Who We Are Sponsors Understanding T-Cell Leukemia Lymphoma What is TCLL? What if I have TCLL? About TCLL Therapy What is TCLL? Lymph nodes are comprised of both T-cells and B-cells of the immune system that, under normal circumstances, function together to fight off infection or rid the body of cancer. Due to breakdowns in the immune cells (caused by mutations or environment), they can transform and become malignant or cancerous. Depending on which cell transforms, doctors recognize B-cell or T-cell lymphomas — both are non-Hodgkin type. T-cell lymphomas are a family of aggressive (fast growing) lymph node cancers that originate from an immune T-cell. T-cell lymphomas are rare; for every person diagnosed with T-cell lymphoma, there are 10 diagnosed with B-cell lymphoma. Under the name of T-cell lymphoma, or PTCL, hide 12 different subtypes. Therefore, each case of PTCL is uncommon; some of the subtypes are exceedingly rare and require special attention. The subtypes of PTCL most commonly diagnosed in the United States are peripheral T-cell lymphoma, not otherwise specified (PTCL-NOS), angioimmunoblastic T-cell lymphoma (AITL), anaplastic large cell lymphoma (ALCL), and T-cell prolymphocytic leukemia (T-PLL). What if I have, or know someone who has TCLL? If you or one of your loved ones are diagnosed with one of the subtypes of TCLL, the first priority is to obtain a referral to a local oncologist for a comprehensive diagnostic work-up. Before any treatments are considered, several steps need to be completed. First, the diagnosis has to be confirmed by a qualified pathologist who has knowledge in lymphomas. In general, community pathologists in the United States are quite skilled in making the correct diagnosis by using sophisticated tests. Occasionally, referrals to academic centers are made in order for a specialty pathologist to get a “second look.” Second, it is important to complete a staging work-up in order to find out how extensively the lymphoma has spread through the body; this is accomplished by a combination of CT scan and PET scan technologies. In addition, a bone marrow biopsy is performed by the oncologist or pathologist to find out whether the lymphoma extended into this body compartment. Third, your physician will determine the “risk of the disease” by putting together the information from the prior steps with additional blood tests; something doctors call “risk-stratification”. This last step is important in deciding on initial therapy and a long-term plan. Given the rarity of PTCL, it is advisable to ask your oncologist for a referral to obtain a second opinion consultation from one of the recognized national experts in T-cell lymphomas that could be within reasonable travel distance from your home. Once the steps above are completed and you and your family have obtained education about your disease (i.e., treatment planning and discussion of possible side effects and risks of chemotherapy), your oncologist will begin treatment. About TCLL Therapy Once the diagnosis of T-cell lymphoma is confirmed and your physician has performed all of the staging, your doctor will choose the most appropriate therapy for you. While treatments can vary depending on the subtype of lymphoma, in most situations patients will receive multi-agent chemotherapy (several chemotherapeutic administered concurrently or sequentially). Treatment is given in cycles; usually every three weeks. Patients with early stage (stage I-II) disease will generally receive 3-4 cycles of chemotherapy (2-3 months), while patients with advanced stage disease (stage III-IV) will generally receive 6-8 cycles of chemotherapy (5-6 months). In addition to chemotherapy, patients with early stage disease will also receive radiation treatment to the area of their disease (i.e., neck, groin, armpit area, etc…). After treatment is completed your oncologist will order a new PET-CT scan to confirm that the lymphoma is in remission (no visible evidence of disease). You will subsequently be followed with CT scans 2-4 times a year for up to 5 years, to ensure that the lymphoma did not return. After 5 years, remission is generally considered permanent (i.e., you are cured of lymphoma). If your physician deems your lymphoma “high-risk” at the time of diagnosis, he or she may refer you for consultation to consider a bone marrow transplant in your first remission. A transplant oncologist will discuss all details, including the risks and benefits of the bone marrow transplantation, with you. If the lymphoma should return after initial remission or if remission is never achieved with first therapy, it is called relapsed or refractory disease. Patients with relapsed or refractory PTCL can still be cured, but it requires more intense chemotherapy regimens, and bone marrow transplantation is mandatory once remission is achieved. At any time during the course of PTCL (initial diagnosis or relapsed/refractory disease), it is always worthwhile to consider participation in clinical trials of new chemotherapy or biologic drugs. You might receive superior and more effective treatment on a clinical trial that would not be available for general use for a number of years. ASK YOUR ONCOLOGIST OR VIEW OUR CLINICAL TRIALS PAGE FOR MORE INFORMATION. Learning Corner Featuring monthly mini-educational sessions on different types of T-Cell cancers Learn More > Be a part of something life changing. Learn how your donation can impact the lives of those affe...

tcllfoundation.org Whois

Domain Name: TCLLFOUNDATION.ORG
Registry Domain ID: D168936500-LROR
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Registry Registrant ID: C138971541-LROR
Registrant Name: ANDREI SHUSTOV
Registrant Organization: T-Cell Leukemia Lymphoma Foundation
Registrant Street: 7020 168th St SW
Registrant City: Lynnwood
Registrant State/Province: Washington
Registrant Postal Code: 98037
Registrant Country: US
Registrant Phone: +1.2066181299
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Registrant Email: ashustov@seattlecca.org
Registry Admin ID: C138971543-LROR
Admin Name: ANDREI SHUSTOV
Admin Organization: T-Cell Leukemia Lymphoma Foundation
Admin Street: 7020 168th St SW
Admin City: Lynnwood
Admin State/Province: Washington
Admin Postal Code: 98037
Admin Country: US
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Admin Email: ashustov@seattlecca.org
Registry Tech ID: C138971542-LROR
Tech Name: ANDREI SHUSTOV
Tech Organization: T-Cell Leukemia Lymphoma Foundation
Tech Street: 7020 168th St SW
Tech City: Lynnwood
Tech State/Province: Washington
Tech Postal Code: 98037
Tech Country: US
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